Alexandra's House


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Welcome to Alexandra's House

Life is full of uncertainty with no guarantees. If the life expectancy of your unborn, newborn, or infant is limited, Alexandra’s House is here to help. Many services are provided directly through Alexandra’s House and others are coordinated through a variety of community resources. Residential care is available for those meeting specific criteria.

Alexandra’s House is a community based, all volunteer, peer-led perinatal hospice and infant care system for parents pregnant with babies with lethal or sub-lethal anomalies, for pregnancies that end unexpectedly at any point, from any cause, and for infants who die in the community, any cause. While its foundation is rooted in faith, its services offer a practical solution in meeting the time-intensive needs of families in these situations.

Alexandra’s House does not interfere with or substitute for any existing medical, social, or hospice agencies’ services. What it does is to help fill in the many gaps in care that do exist, as defined by those who have lived the experience of caring for a dying unborn or newborn baby. The ideal time to consult Alexandra’s House is at the time of diagnosis or loss: a) so parents are fully informed and b) to help alleviate some of the acute anxiety and very common feelings of isolation and abandonment. Alexandra’s House does not charge for its services nor does it accept contributions from people they serve.

Over 90% of our referrals come from the medical community – perinatologists, hospitals, doctor’s offices, sonographers, the community at large and through our website. We have followed families in America as far away as Alaska and have provided assistance in the UK, France, Germany, and New Zealand.

Services include: bringing meaning to suffering, assistance in grief resolution, parent-parent partnering, birth planning, funeral planning, long-term support, one to one and group meetings, pre-natal and post-natal housing, if required. If a baby survives and is dismissed from the hospital, the family and baby can stay here for the duration of their life. Professional nursing services are provided through a licensed hospice agency.

PRENATAL IMAGING A BONDING EXPERIENCE FOR THE WHOLE FAMILY

Ten fingers and ten toes - that's the first thing every parent checks on their newborn.  For the parents of Alexandra's House those simple things are not taken for granted.  I am Jeanette Burlbaw, a sonographer with 35 years of experience.  Twenty of those have been in the perinatal departments here in Kansas City.  I have been the sonographer who evaluated your baby prenatally and have been with you when you found out there was a compl

Ben and Christy Shively Family

 (These are thoughts the children wrote before Baby Ian was born)

 

Dear Ian,

Drew Morris

Dawson Morris age 9

Brother of Drew Morris

 

John and Kim Lozano Family

(Editor’s note:  Kim and John’s first born is the delightful Gabriel. We met them when their second son was diagnosed prenatally with a fatal birth defect. Zachary did not survive. Several years later they conceived a beautiful baby girl and the pregnancy was advancing normally. Unexpectedly their perfectly formed Isabella was stillborn. Recently Kim and John received a new baby into their family through adoption.

Tyler Brown About Baby Brother Trenton

My mom (Janet Brown) let me know about the writings for the Alexandra's House newsletter.  Hopefully this doesn't sound like an overt advertisement for Alexandra's House rather than a story, but Alexandra's House was a crucial part of my family's story.  So, telling it without Alexandra's House would make it incomplete.  Regardless, here's my own story: